Wow a lot has been going on the past two days.
We have been in a lot of meetings the past two days over Emmie-Rose's care.
Over the holiday weekend we called and left a msg to Dr. Kato's office in Miami.
Thank you Betty!
He got back with us and did a conf. call with Stephanie and I and a room full of
the staff at the U. I think the staff at the U were surprised that the Yannella's were
calling around checking out their options because they were very interested in knowing
why a transplant team from Miami was contacting them.
The team in Miami went over Emmie-Roses condition and status but she did not fit
the paramaters they were looking for. She would need to be totally off the vent breathing on her own, and somewhat older. It is very hard to find doner organs for such a small baby.
At least we tried that avenue.
Had three meetings this morning.
First meeting with the head of doctors to go over issues we had with the surgen that worked on Emmie-Rose. I am sad to say that I am glad I have lawyers on retainer.
While we were in the first meeting, our doctor was reassessing Emmie-Rose because she seemed to be looking better and her vitals were better than the days before. Even tho the intistine is a loss she continues to look better. This has the staff totally baffeled because they would have thought she would have gone into shock and passed away by now.
Oh darn! Proved you wrong! Emmie-Rose power strikes again!
Emmie-Rose is still going to pass away and here are the reasons why. After the second meeting the doctor called around asking why she may be acting the way that she is.
They put her back on some of her meds and will she what she does here in the next few days.
They not giving us false hope, but do not want to give up trying because she is not giving up!
Its now Thursday morning and Stephanie fell asleep in the room with Emmie-Rose in her arms.
I ran home to do some laundry, shave, shower, and head back up with Stephanie.
Jenn - Ava's mom, gave Stephanie a bracelet that says that.
Ava should come off the vent sometime Thursday. She was having problems with feedings
which I think they have worked out. Emmie-Rose misses her best friend Ava now that
they are in diff rooms. The will always be sisters from diff. mothers...
Emmie-Rose is in gods hands. We are thankful for every hour and minute she is with us.
Sleep well pretty princess. We love you soooooo much...
Forever... We promise... No matter what...
Love Chris & Stephanie