The Story of Emmie-Rose

This is the story of a little girl that came into this world way ahead of schedule. Now fighting day by day until she can be home with her family. This is Emmie's story. From 23 weeks old on...

Friday, September 15, 2006

Sep 15 - Court

The hospital did not respond to our legal demands yesturday.

We did get their attention yesturday with everyones help
contacting all the diff media outlets! Thank YOU!
The hospital was freeking out calling our lawyers asking what
in the world were we doing with the media.

We spent most of the afternoon at the lawyers office.
We are waiting for the phone call this morning to head into court
to start filing paperwork.

The hospital seems to want to play hardball because they did not respond to any of our demands yesturday.

Emmie-Rose was still going strong last night. Mommy held her for
a long time yesturday afternoon. We had visitors come and say hello
then came home to rest.

Will fill everyone in as things unfold today.

posted by cyannella @ 4:18 AM  

48 Comments:

  • At 9/15/2006 05:05:00 AM, Anonymous Anonymous said…

    You grow girl! Wishing you and your family the best!!!! Stay Strong!

     

  • At 9/15/2006 05:27:00 AM, Anonymous Anonymous said…

    Keeping you and your family in our prayers. Keep your head up high and stand tall, you have God on your side!

    Bless you all

     

  • At 9/15/2006 05:36:00 AM, Anonymous Anonymous said…

    God Bless you all today.
    --Kevin.

     

  • At 9/15/2006 05:50:00 AM, Anonymous Anonymous said…

    Happy Birthday Emmie-Rose!

     

  • At 9/15/2006 05:57:00 AM, Anonymous Anonymous said…

    It's 5:30am in California, and this is the 1st thing I did this morning was to check on Emmie. I feel as if all of you have become part of my family. Stay strong in your fight today and God Bless You. Mara Lopez

     

  • At 9/15/2006 06:11:00 AM, Anonymous Anonymous said…

    someone posted the blog on one of my regular message boards and I have helped to post it on others to get the message out. I live in Canada, so when yo do want media involved, I will definitl notify our media here. Maybe some worldwide attention will give the hospital the kick in the butt it needs to help little Emmie-Rose. If there is anything at all we can do, let us know. My heart goes out to you all. Keep fighting baby Emmie-Rose!!!

     

  • At 9/15/2006 06:12:00 AM, Anonymous Anonymous said…

    I was wondering if you have tried to contact Shriners Hopsital for Children? Maybe they could help you.

     

  • At 9/15/2006 06:19:00 AM, Anonymous Anonymous said…

    (((((HUGS))))) for Emmie Rose and her family from Australia.Prayers for the little angel circle the whole world.

     

  • At 9/15/2006 06:39:00 AM, Anonymous Anonymous said…

    Praying for compassion from someone today! Emmie Rose is blessed to have you as her parents. Keep up the good fight - the Lord is on your side.

     

  • At 9/15/2006 06:45:00 AM, Anonymous Anonymous said…

    If you haven't contacted Riley Children's Hospital in Indianapolis you should call them.

    Your little girl and your family are in my prayers.

     

  • At 9/15/2006 06:45:00 AM, Anonymous Anonymous said…

    I too read this yesterday and checked first thing this morning to see how Emmie-Rose is doing.

    Stay Strong. Will keep Emmie-Rose and your family in my thoughts and prayers.

    Susan

     

  • At 9/15/2006 07:09:00 AM, Anonymous Anonymous said…

    I say GROW GROW and keep strong little one and show them that God's hand is in this and that he can do ANYTHING. God gave us what we have today and what we will have a 100 years from now. He can do what man can not!!!
    Many prayers to you little one and for your mom and dad!!!
    Jennifer Harkins
    Cottondale, Al

     

  • At 9/15/2006 07:34:00 AM, Anonymous Anonymous said…

    Just wanted to wish you the best in court. I too feel like you've all become a part of my family, Emmie-Rose is always on my mind. Keep up the fight little angel, you were blessed with the best mommy and daddy!
    God Bless

     

  • At 9/15/2006 08:12:00 AM, Anonymous Anonymous said…

    Keep hanging in there for Emmie-Rose!

    We have a 24 weeker that was born in 1997 at 1lb. 6 oz. that is doing wonderful. Don't give up or loose hope.

    Thinking of you and your family at this time and keeping you in our thoughts and prayers,

    Mary, Mark, Marisa (24 weeker) and Marley (36 weeker)

     

  • At 9/15/2006 08:28:00 AM, Anonymous Anonymous said…

    If you haven't yet, contact:

    Scottish Rite Children's Hospital
    1001 Johnson Ferry Road NE
    Atlanta, GA 30342-1600
    404-785-5252

    My prayers are with you and your family. Keep fighting the fight!

     

  • At 9/15/2006 08:56:00 AM, Anonymous Anonymous said…

    Keep the faith and sending gentle hugs and love to Emmie-Rose. If you need me, the offer still stands! Frances

     

  • At 9/15/2006 09:39:00 AM, Anonymous Anonymous said…

    I check this blog daily to see how things are unfolding. I am so happy to see little Emmie Rose still fighting!! The power of prayer is amazing! She is a little trooper! I'm praying that things go quickly and smoothly for you in court. And I'm praying that God opens the eyes of the doctors and makes them see that this little girl is is such a fighter that it's their obligation to fight with her.
    ((HUGS))
    Amy in WA.

     

  • At 9/15/2006 09:53:00 AM, Anonymous Anonymous said…

    Like many others out there this was the first thing I checked when I got online today. I hope things go quickly with court and someone makes these doctors realize that she is a fighter and isnt ready to leave your family... Lots of hugs and prayers to you and to Little Emmie-Rose

    Jessica

     

  • At 9/15/2006 09:56:00 AM, Anonymous Anonymous said…

    Have you guys tried the Childrens Hospital in Atlanta ?? Not sure what they can do but i know they do TONS for children. My heart and prayers go out to you and your family. I hope Emmiie keeps showing those Dr's what she is made of. She is a tough little fighter. Emmie you are also in my prayers. You show them girl !!!

     

  • At 9/15/2006 09:56:00 AM, Anonymous Anonymous said…

    I cannot believe the hospital staff refuse to feed this baby. That's terrible. Is there any way to get nutrition into her?? At least so you can proceed with the legalities and second opinions knowing she's being fed something?

     

  • At 9/15/2006 10:02:00 AM, Anonymous Anonymous said…

    I mentioned this site to a support group forum I belong to and one of the members suggested Kosair Childrens Hospital in Louisville, Kentucky. She said that's where one of her twins was and that they were caring for 20 weekers there. Good luck! I'll keep praying.

     

  • At 9/15/2006 10:19:00 AM, Anonymous Anonymous said…

    Kosair Children's Hospital, University Of Louisville Neonatal unit Dr. Robinson.

     

  • At 9/15/2006 10:30:00 AM, Blogger Paul Buede said…

    Please provide more detail if you have time, is the baby still not being fed? How about meds and stuff? Exactly what condition is she in right now with regards to her treatment?

     

  • At 9/15/2006 11:08:00 AM, Anonymous Anonymous said…

    Hi there - I have just received a link to your blog from a Trisomy21 online support group I belong to. I am here in Westland, MI - my daughter Lily had her heart surgery at U of M and although I have not read your whole story to know everything - I am just so saddened that you have to fight for your daughter to live. Have you tried Children's Hospital downtown Detroit? If there is anything that I can do or any contacts I can make for you please let me know! My daughter Lily only had a 50/50 chance of making it and we were at Oakwood and they never gave up on her.... Please know I keep you guys in my prayers and if you need to you can email me at lisahuckleberry@hotmail.com

     

  • At 9/15/2006 11:17:00 AM, Anonymous Anonymous said…

    I had wonderful care for my newborn at Munson Hospital NICU in Traverse City, MI. The doctors and nurses there are great. I also have had great care at Children's Memorial Hospital in Chicago.

     

  • At 9/15/2006 12:06:00 PM, Anonymous Anonymous said…

    Happy 2 month old birthday sweet Emmie Rose! I'm so sorry to hear that you are having so many troubles receiving the proper care to keep her alive. My heart is just breaking for you as you fight to save your baby's life. I will keep you and your family in my prayers. As a side note, I know of two wonderful people who were both born extremely premature (both under 2lbs at birth and both at around 24 weeks gestation) and they are both alive and a blessing to their families today!

     

  • At 9/15/2006 12:09:00 PM, Anonymous Anonymous said…

    Emmie-Rose has a wonderful attorney now. He worked through most of the night to prepare the lawsuit. It is in the hands of the Judge now. We all wait, pray, and hope . . .

     

  • At 9/15/2006 12:13:00 PM, Anonymous Anonymous said…

    God bless Emmie-Rose and your family. Prayers are being said daily for her strength and yours to keep the fight for her life going. When your load gets heavy God strengthens your arms to carry it.

    A Father's goodness is higher than a mountain; a mother's strength is deeper than the sea.
    Chinese Proverb

     

  • At 9/15/2006 12:15:00 PM, Anonymous Anonymous said…

    Emmie-Rose,Chris, Stephanie and the whole Yanella family: Blessings on you as you go through this horrific ordeal. We are all praying for you and I (Jean) have sent out links to your blog to a number of prayer networks in the area. Please let us know of ANY way that we can help/support you all. We continue to pray for Emmie-Rose to receive the care she needs and deserves, and for her restoration to full health.

    Your HOPE family.

     

  • At 9/15/2006 01:11:00 PM, Anonymous Anonymous said…

    Try Scottish Rite in Atlanta #1 gut and Neuro hospital, also ranked #3 in the top hospitals for preemie care.

     

  • At 9/15/2006 01:12:00 PM, Anonymous Anonymous said…

    Dear Precious Emmie,
    After visiting you last night my heart just melted. Words cannot express my feelings when I left. You are so beautiful and precious. I hope your heard my prayers. be strong sweet angel. The lord is watching over you. Stephanie and Chris sorry I missed you. I hope today is going well for you all.
    ((((((((((((hugs))))))))))))

     

  • At 9/15/2006 03:32:00 PM, Anonymous Anonymous said…

    I can't believe the Dr's at Motts are acting that way. I have a cousin that was born at 26 weeks and spent over two months there. His parents loved the care he was getting, and never had any complaints. I'm sorry you're having so much trouble with them. I always thought they were supposed to be one of the best children's hospitals around. I'll be keeping you all in my prayers!!

     

  • At 9/15/2006 04:06:00 PM, Anonymous Anonymous said…

    I have a friend whose baby was born at Meriter Hospital in Madison Wisconsin she was born at 27 weeks and weighed 2 lbs 1 oz and had a lot of problems. She was born with a tumor that weighed as much as her and she had to have surgery immediatly. The dr.'s gave her 1% chance of ever leaving the hospital. Even though they didn't have much hope they never gave up on her. She is now almost 4 months and is at home and doing great! So don't give up. And find some dr's who won't give up!

     

  • At 9/15/2006 04:43:00 PM, Anonymous Anonymous said…

    My heart is breaking for you.

    My son and daughter were born in week 22, and didn't get any natal care because they were born too soon. The ethics clause prevented anything from being done to try and save them.

    Your daughter is in my prayers.

    Your story has made it all the way to Canada.

     

  • At 9/15/2006 05:15:00 PM, Anonymous Anonymous said…

    I'm so sorry for what U of M Hospital is doing to poor Emmie-Rose. My thoughts and prayers are with you!

    Also, I e-mailed everyone on my MySpace friends list (189 people!) to alert them about what was going on and posted the URL for your blog.

    I truly hope that U of M will wake up and that Emmie-Rose will pull through...

     

  • At 9/15/2006 05:44:00 PM, Anonymous Anonymous said…

    I am so sorry for your pain. My thoughts and prayers are with your baby and your family.

     

  • At 9/15/2006 06:14:00 PM, Anonymous Anonymous said…

    Chris/Stephanie, It is heart breaking to hear Emmie-Rose's story. I have 6 children myself and like you would never give up hope. I will take your story to my church for prayer requests, maybe someone knows someone that can help you. If nothing else we will pray for your little girl and your family. Erika

     

  • At 9/15/2006 06:49:00 PM, Anonymous Anonymous said…

    Keep on fightin' Emmie! You're in my prayers.
    I think of you all 1st thing when I sign on, so I come check for an update. I've told my husband about you all, and he asks too.
    I'm anxious to see how court went!
    God bless all of you!!!

     

  • At 9/15/2006 07:27:00 PM, Anonymous Anonymous said…

    My heart goes out to you. I wish I were rich and could pay for you to be at a different hospital. I hope those doctors on the Non-ethical committee are shamed. Have you filed a compliant with your state's medical board about those doctors who are not providing care? Pray I will because God is great, and someday those sorry excuse for doctors will have to answer for their actions, or rather lack of action. But in the meantime, I lift you and your family up to God.

     

  • At 9/15/2006 07:47:00 PM, Anonymous Anonymous said…

    What about the children's hospitals in Dayton or Indianappolis? Your family is in my thoughts and prayers

     

  • At 9/15/2006 08:31:00 PM, Anonymous Anonymous said…

    i have a niece who has had 4 liver transplants and overcome cancer and she is just the tender age of 4. it all started before she was even born. she had amazing docs and parents. im not sure if they can give you any insite but here is her mothers email address and she was seen in salt lake Utah at the childrens hospital. heiseycj@hotmail.com her name is chantel. hope that this gets you some info. our prayers our with you and your daughter.

     

  • At 9/15/2006 08:48:00 PM, Anonymous Anonymous said…

    A prayer for the Physicians..."Exalted God -- Before I begin the holy work of healing the creations of your hands, I place my entreaty before the throne of your glory that you grant strength of spirit and fortitude to faithfully execute my work. Let not desire for wealth or benefit blind me from seeing truth. Deem me worthy of seeing in the sufferer who seeks my advice - a person - neither rich nor poor. Friend or foe, good man or bad, of a man in distress, show me only the man.
    If doctors wiser than me seek to help me understand, grant me the desire to learn from them, for the knowledge of healing is boundless. But when fools deride me, give me fortitude! Let my love for my profession strengthen my resolve to withstand the derision even of men of high station. Illuminate the way for me, for any lapse in my knowledge can bring illness and death upon your creations. I beseech you, merciful and gracious God, strengthen me in body and soul, and instill within me a perfect spirit."

    We are all praying for you and Emmie Rose...much love Sue and team at (healingquest.ca)

     

  • At 9/16/2006 05:56:00 AM, Blogger strunny said…

    you came over on our church's prayer chain - i'm praying for you & so are lots of other people!

     

  • At 9/16/2006 07:02:00 AM, Anonymous Anonymous said…

    Has anyone heard from Stephanie or Chris? I hope and pray everything is ok.

     

  • At 9/16/2006 07:17:00 AM, Anonymous Anonymous said…

    Just checking in on Emmie Rose. As a parent of a micropreemie myself I know all that you're going thru down to receiving support from others when you're used to giving it! Also the rollar coaster of the nicu.

    My daughter was a 24 weeker and at Loyola Hospital in Maywood IL.
    Jon Mauraskas is an outstanding physicain that heads up one of the best nicus in the country. He has had babies less than 12 oz survive and lead miracle lives.
    I suggest you contact him.

     

  • At 9/17/2006 03:13:00 AM, Anonymous Anonymous said…

    Hi Chris and Stephanie,
    I feel the Lord woke me up early to check on Emmie-Rose this morning and to pray for her. I am doing that right now.

    DO NOT GIVE UP!! Keep speaking life words to her. Keep telling her she IS going to come thru this. God IS on her side!!

    Have also contacted others to pray.
    Stay strong!!
    Karan

     

  • At 9/17/2006 03:21:00 AM, Anonymous Anonymous said…

    Hi Chris and Stephanie,
    I feel the Lord woke me up early to check on Emmie-Rose this morning and to pray for her. I am doing that right now.

    DO NOT GIVE UP!! Keep speaking life words to her. Keep telling her she IS going to come thru this. God IS on her side!!

    Have also contacted others to pray and do what they can to help.
    Stay strong,Chris and Stephanie!!
    Karan

     

  • At 9/21/2006 12:25:00 PM, Anonymous Anonymous said…

    I am so sorry to hear about your lost. I too lost my son to NEC. My son was born at 26 weeks (1lb 5oz). I know what you are going through. Mother to Mother - Stay strong and put your faith in God and know that he makes no mistakes. Emmie-Rose and Lil' Sam are both in heaven and they are our angles watching over us right now. My heart goes out to you and your family. If you ever need any one to talk to please email me any time.

    Look to the hills for God will bless you and your family.

    http://home.comcast.net/~dstdestinee/Baby_Bills.html

     

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