The Story of Emmie-Rose

This is the story of a little girl that came into this world way ahead of schedule. Now fighting day by day until she can be home with her family. This is Emmie's story. From 23 weeks old on...

Wednesday, September 13, 2006

September 13th ONE MORE BLOW!!!!

Well here's the deal... We have been on the phone all morning with Docs trying to get her transferred to another Hospital for a Second Opinion. Problem with that is the Docs at U of M are talking these other hospitals out of accepting Emmie-Rose for the Second Opinion that Rightfully We are allowed to receive.

We called Toledo back for a letter of acceptance and explaination to send to the Insurance Company for an appeal. In turn, The Doc tells Us that They have spoken to U of M and U of M has discouraged them from taking her due to another Ethics Committee meeting that We werent even told about or asked if We wanted to attend. The way the Docs at U of M are going We will NEVER get an Unbiased opinion. The Ethics Committee is now involved at Toledo even though they have NOT even assessed Emmie-Rose's condition firsthand and without an overturn decision by that Committee, the Doc that is willing to take her case is not allowed to do so.

They have now taken it upon Themselves to take away her TPN (nutrients She needs to grow, her "food") and her Blood Transfusions, Platelets and Lipids. She has had all of these things since birth until last Sunday when She had her surgery. They told Us She would die in two days, a week later She is still here and We asked them to give her her TPN, Blood and Platelets back and they did (yesterday). Yesterday they called a meeting to let Us know that "THEY" have "decided" amongst themselves that they are going to NOT feed her anymore or offer Her anymore Blood, Platelets or anything else that will help her to grow. So basically they want to starve her and let her blood run out so She can die. What does that sound like to you??? Torture if you ask ME!!

We just dont understand how a group of people who call themselves "doctors" can just "decide on a whim" that because this Child isnt "PERFECT" in their eyes that She isnt worth fighting for. They keep feeding Us the line "Well, do you know how hard it is going to be down the line/in the future". WHO CARES ABOUT TOMORROW, Lets work on today. They feel that Emmie-Rose is a "dead" issue and they have been just waiting for her to die. GUESS WHAT PEOPLE, LOOK WHO's STILL HERE!! NOW WHAT????????????? So their next course of action is to keep everything away from her that She has needed since birth and see if that makes her die. They let her blood get so low that that could have killed her. They are tired of dealing with Emmie-Rose because they see Her as "imperfect" and thats what they want to save is the ones that are going to make it "Long term". Who knows but the Lord who will make it the next 2 minutes let alone a yr from now. Obviously, U of M is trying to play "god" here and take it amongst themselves to kill Her at this point.

We need an Unbiased Second Opinion that We are entitled to as well as requested from the U of M team. We need someone out there to give Our Little Girl the chance. We want Her to live or die with Respect and Dignity that any Human being has the right to have. U of M is just completely giving up on a Living Human Being and that is NOT Right. We need to fight for Our Loved Ones and Stand Up for them when No One else will. Emmie-Rose is a fighter and until the Lord calls Her home, Mommy and Daddy are going to be fighting for Her every step of the way. There is a reason She is here and touching so many lives in the process. As long as She is going to fight, So are We.

Please Help Us!! IF Anyone has any contacts to help Us out with this situation, please either post or email Us. We need help from Everyone to Help Our Little Girl to get the Care She so deserves. This is a very time sensitive thing, We need to move quickly before U of M decides to take things into their own hands with more bad decisions.

Love,
Stephanie and Chris
Emmie-Rose's Mommy and Daddy

We need help finding a Doc to accept her and look at her without hearing one side only. If anyone knows a Neonatologist, a Ped Surgeon, Ped Doc with Nicu experience... Please pass Our story on. We need to move pretty fast.

Thanks for reading!

Please Continue the Prayers!!

You GROW GIRL!!!

73 Comments:

  • At 9/13/2006 11:32:00 AM, Anonymous Anonymous said…

    Oh dear... this is breaking my heart. I think its time to put her story to the media!!!

     
  • At 9/13/2006 11:52:00 AM, Anonymous Anonymous said…

    I agree- go to the media. If anything it will increase the prayers by thousands, millions maybe.

    I am praying hard- Emmie Rose has touched my heart so deeply- her will to live is incredible. This little girl isn't done fighting, so the doctors shouldn't be done fighting either- it's as simple as that.

    Praying hareder than ever...
    Amy (online friend of Kris)

     
  • At 9/13/2006 12:12:00 PM, Anonymous Anonymous said…

    TO ALL THOSE OUT THERER WHO LOVE AND PRAY FOR EMMIE-ROSE, THANK YOU THANK YOU!!!!!!!I AM EMMIE-ROSE'S NANNA AND I HAVE BEEN ON THE PHONE ALL DAY TRYING TO REACH MEDIA ALONG WITH EMMIE-ROSE'S AUNT AMBER AND COUSINS JAYME & AMY. WE HAVE CALLED ALL THREE NETWORKS * I HAVE A CALL INTO JO MATHIS AT ANN ARBOR NEWS. EVERYONE I QUESTIONING THE LEGAL ASPECTS--DO WE HAVE A LAWYER ETC. PLEASE PLEASE WE ARE BEGGING FOR EMMIE-ROSE'S LIFE AND CHANCE TO SEE HER THROUGH THIS CRISIS. PLEASE ANY HELP YOU CAN GIVE US, PHONE NUMBERS OF GROUPS TO PICKET IF NECESSARY,ANYONE THAT CAN GUIDE US IN THE RIGHT DIRECTION AS TO WHAT TO DO NEXT TO GET SOME RESULTS--THIS WOULD BE APPRECIATED SO MUCH. WE ARE TRYING TO DO EVERYTHING WE CAN THINK OF BUT IF YOU HAVE ANY IDEAS, EVEN IF YOU THINK THEY ARE CRAZY, PLEASE CONTACT US THRROUGH THE WEBSITE. THANKS FOR LISTENING TO A BROKENHEARTED GRANDMOTHER!!! PAM BRENDTKE

     
  • At 9/13/2006 01:35:00 PM, Anonymous Anonymous said…

    I know there is a fantastic neonatal intensive care unit at All Children's Hospital in St. Petersburg, Florida - actually on a par with Mayo Clinic in Rochester, Minnesota, which is another place that I would contact. Please try those two institutions - at this point, don't be thinking just close to home - I agree that time is of the essence. Good luck and keep us updated.

     
  • At 9/13/2006 01:37:00 PM, Anonymous Anonymous said…

    I'm so sorry to read all that has been happening. It's just so wrong.

    Try contacting Hospital for Sick Kids in Toronto, Ontario. They take international patients. It is a truly amazing hospital. And they aren't too too far from where you are at now.

    http://www.sickkids.ca/aboutHSC/section.asp?s=Contact+SickKids&sID=227

    Many prayers and good thoughts for your entire family.

     
  • At 9/13/2006 01:49:00 PM, Anonymous Anonymous said…

    You might want to reach out to the March of Dimes and see if they have any resources or contacts you could leverage. http://www.marchofdimes.com/prematurity/nicu/index.asp

     
  • At 9/13/2006 01:49:00 PM, Anonymous Anonymous said…

    You might want to reach out to the March of Dimes and see if they have any resources or contacts you could leverage. http://www.marchofdimes.com/prematurity/nicu/index.asp

     
  • At 9/13/2006 01:52:00 PM, Anonymous stephanie said…

    Chris, Steph.
    Below are contacts for state senators, house of rep, us house of rep & governor granholm. It may be worth putting in a call. Nothing can hurt at this point.



    Governor Jennifer M. Granholm
    P.O. Box 30013
    Lansing, Michigan 48909
    PHONE: (517) 373-3400
    PHONE: (517) 335-7858 - Constituent Services
    FAX:(517) 335-6863


    Senators:
    Levin, Carl- (D - MI) Class II
    269 RUSSELL SENATE OFFICE BUILDING WASHINGTON DC 20510
    (202) 224-6221

    Stabenow, Debbie- (D - MI) Class I
    133 HART SENATE OFFICE BUILDING WASHINGTON DC 20510
    (202) 224-4822

    Michigan House of Representatives:
    053 Representative Chris Kolb 517-373-2577 chriskolb@house.state.mi.us
    054 Representative Ruth Ann Jamnick 517-373-1771 rjamnick@house.state.mi.us
    055 Representative Gene DeRossett 517-373-0828 gderossett@house.state.mi.us

    US house of reps:

    HOuse of Rep John Dingell
    Ypsilanti:
    5 South Washington Street
    Ypsilanti, MI 48197
    (734) 481-1100

    or DC:
    2328 Rayburn House Office Building
    Washington, DC 20515
    (202) 225-4071

     
  • At 9/13/2006 02:06:00 PM, Blogger alicek131 said…

    We just want you to know that your entire class at ComputerTraining.com is thinking of you and praying for all of you and especially, Emmie-Rose.

    If you haven't called DeVos Children's Hospital in Grand Rapids...they are a great hospital.
    http://www.devoschildrens.org/

     
  • At 9/13/2006 02:40:00 PM, Anonymous Anonymous said…

    http://www.rileyhospital.org/

    They are known for taking children if they can help. They even took the little boy from Afghanistan. WOrth a try.

     
  • At 9/13/2006 02:52:00 PM, Anonymous Anonymous said…

    You may want to try Phoenix Childrens Hospital, I know it is far from you but people from all over the world have gone there. This is truly breaking my heart and little emmie is a true fighter. I just can not understand why they are doing this. This is not right. Do you have a lawyer fully involved with this now?

     
  • At 9/13/2006 02:55:00 PM, Anonymous Anonymous said…

    Phoenix Children's Hospital
    1919 E. Thomas Road
    Phoenix, AZ 85016
    (602) 546-1000


    Here is that info. for Phoenix

     
  • At 9/13/2006 03:24:00 PM, Anonymous Anonymous said…

    HAVE YOU LOOKED INTO THE HOSPITAL IN LEXINGTON KY? I KNOW THAT UK SAVED MY MOM WHEN THEY TOLD HER SHE ONLY HAD SIX MONTHS TO LIVE. THEY ARE A GREAT HOSPITAL.
    ALL MY LOVE TO YOU ALL, TONYA

     
  • At 9/13/2006 03:38:00 PM, Blogger Dawn said…

    I have a plea for help on all my boards. I also sent you an email from work. Someone on my baby board responded with this:

    have you guys tried completely out of state?

    have they looked to see if any of the Shriners Childrens Hosptials will take her case? Or St. Judes? I am in Atlanta and we have Childrens Healthcare of Atlanta and they accept cases from all over the nation...


    Check to see if your hospital is apart of the AMA... I believe they have an ethics standard... and I can't believe that allowin a child to die without the parents consent wouldn't violate that ethic...
    That would provide you with another avenue to fight them not supplying her with what she NEEDS.

    I can't say how much that touched my heart that this poor child is goin through this...

     
  • At 9/13/2006 03:42:00 PM, Anonymous Anonymous said…

    http://www.childrensmemorial.org/
    CHICAGO

    The poster further above also said a good hospital
    Riley's Childrens Hospital

     
  • At 9/13/2006 03:44:00 PM, Blogger Dawn said…

    http://www.stjude.org/

     
  • At 9/13/2006 03:47:00 PM, Anonymous Anonymous said…

    Sorry here is another good team of NICU DRS

    http://www.advocatehealth.com/hope/about/

     
  • At 9/13/2006 03:48:00 PM, Anonymous Anonymous said…

    http://www.advocatehealth.com/hope/about/

     
  • At 9/13/2006 03:49:00 PM, Anonymous Anonymous said…

    www.advocatehealth.com/hope/about/

     
  • At 9/13/2006 03:50:00 PM, Anonymous Anonymous said…

    Sorry it keeps cutting off. The last part is about/

     
  • At 9/13/2006 03:51:00 PM, Anonymous Anonymous said…

    have you tired Vanderbilt childrens hospital here in nashville. worth a shot

     
  • At 9/13/2006 03:52:00 PM, Blogger alicek131 said…

    St. Joseph Mercy Hospital


    5301 McAuley Drive
    Ypsilanti, MI 48197
    734-712-3456

    They fight for all lives...They are a Catholic hospital and won't turn people away.

     
  • At 9/13/2006 03:54:00 PM, Anonymous Anonymous said…

    http://www.advocatehealth.com/
    hope/services/neonatology/

     
  • At 9/13/2006 03:55:00 PM, Blogger Dawn said…

    I forgot to say- Don't let these @%^@%^@%^ people know what your doing either. Its none of their darn flippin business!!

    Hang in there Emmie-Rose!! You have people from all over the world praying for you, now more then ever, so you just hang in there!!!!

     
  • At 9/13/2006 04:04:00 PM, Anonymous Anonymous said…

    Hi, i am in phoenix and I have contact Fox news and they are going to read this blog to see about maybe doing a story. Hope that helps.

     
  • At 9/13/2006 04:21:00 PM, Blogger Dawn said…

    I emailed Fox 8 and Newsnet 5!! :-)

     
  • At 9/13/2006 04:44:00 PM, Blogger Dawn said…

    From a friend on my lab board:

    Dawn,

    As I was sitting naming off hospitals I remembered the hospital Kristens babies were in. They were at Presbyterian/St. Luke's Medical Center in Denver, CO. I don't have any names for you and I am sorry. I have been waitting for Kristens parents to come home or her to come over and neither has happend. I have to run out but if I get any more info I will send it your way.
    Heres the website
    [url]http://www.pslmc.com/[/url]

    My mom also said to try and contact Shriners hospitals. They are free of charge if you can not pay.
    If I come up with anything else, or when I talk to Kristen or her parents I will send you that information.
    Good luck
    Kathryn

     
  • At 9/13/2006 04:55:00 PM, Anonymous Anonymous said…

    Can your lawyer file an injunction to try to give you a chance to have her moved? Something to buy you time?

    It's an emergency situation if she is no longer being fed and given the blood products she needs.

     
  • At 9/13/2006 04:55:00 PM, Blogger Dawn said…

    From a friend on one of my boards:

    http://www.ohiolife.org/index.asp

     
  • At 9/13/2006 05:22:00 PM, Anonymous Anonymous said…

    Praying that you find the help you need for Emmie Rose.

     
  • At 9/13/2006 06:11:00 PM, Anonymous Anonymous said…

    go to the media! yes! get the public in on what this hospital is doing. start a lawsuit!

     
  • At 9/13/2006 06:12:00 PM, Blogger Dawn said…

    How about John Hopkins Childrens Hospital

    http://www.hopkinschildrens.org/pages/about/index.cfm

     
  • At 9/13/2006 06:15:00 PM, Anonymous Anonymous said…

    Providence St. Vincent's Medical Center
    9205 SW Barnes Road
    Portland, Oregon 97225
    503-216-1234

    my son stayed in the nicu here. and he did so well for the 2 weeks he needed to be there.

     
  • At 9/13/2006 06:25:00 PM, Blogger Dawn said…

    Children's Miracle Network


    http://www.childrensmiraclenetwork.org/

     
  • At 9/13/2006 06:36:00 PM, Anonymous Anonymous said…

    Maybe you can contact your representative? I am so sorry that you are going through tis. Prayers from Alaska

     
  • At 9/13/2006 06:43:00 PM, Anonymous Melanie (friend of Dawn's) said…

    Try to contact the media and tell them your story!!

    Also, perhaps try calling the Hospital for Sick Children in Toronto, Canada!!!

     
  • At 9/13/2006 06:50:00 PM, Anonymous Leah said…

    My heart is just sick reading this..

    I think EVERYONE that reads this needs to send an email to the following people!

    MAKE THEM HEAR OUR VOICE! MAKE THEM RESPONSIBLE FOR THIS PRECIOUS LIFE!

    Please email the following:
    jhieftje@a2gov.org Ann Arbor Mayor
    ctn@a2ctn.org 16,17,18,19

    I will come up with some more names...Wish I were closer to be able to help get our voice out there!

     
  • At 9/13/2006 06:53:00 PM, Blogger Laura said…

    God bless your tiny little one. I've been passing on your link all over since I saw it posted in one of my forums.

     
  • At 9/13/2006 07:02:00 PM, Anonymous Leah said…

    Copy and paste an email to these addresses with the link to the blog!


    JHieftje@ci.ann-arbor.mi.us;JLowenstein@ci.ann-arbor.mi.us;SRapundalo@ci.ann-arbor.mi.us;LGreden@ci.ann-arbor.mi.us;JCarlberg@ci.ann-arbor.mi.us;MHiggins@ci.ann-arbor.mi.us;wwoods@ci.ann-arbor.mi.us;MTeall@ci.ann-arbor.mi.us;CEasthope@ci.ann-arbor.mi.us;RJohnson@ci.ann-arbor.mi.us;JRoberts@ci.ann-arbor.mi.us

     
  • At 9/13/2006 07:06:00 PM, Anonymous Anonymous said…

    My heart goes out to you and your family. I agree with everyone else...go to the media. That little girl should have the same opportunity as the next baby.

     
  • At 9/13/2006 07:07:00 PM, Anonymous Anonymous said…

    Prayers offered for the strength and well being of little Emmie Rose and her loving family.
    May God protect you all.

     
  • At 9/13/2006 07:20:00 PM, Blogger munkeesmama said…

    Coming from a preemie parent, prayers are with you guys. I will be forwarding this to the nicu who helped take care of my daughter!

     
  • At 9/13/2006 07:22:00 PM, Blogger munkeesmama said…

    Please try loma linda childrens hospital in loma linda california!!!!

    here is a link with contact information!

    http://www.llu.edu/lluch/nicu/?PHPSESSID=caa84290a7a3809063f12fcc

     
  • At 9/13/2006 07:28:00 PM, Blogger Helen said…

    Keep fighting, Emmie Rose! You and your family are in our thoughts and prayers!

     
  • At 9/13/2006 07:30:00 PM, Anonymous Leah said…

    We contacted Nancy Grace and Anderson Cooper . Also, Aaron sent a Link to Fark.com to your blog.

    We haven't heard if it has made it to the front page but if you are a Fark subscriber it will come to them.

     
  • At 9/13/2006 07:33:00 PM, Anonymous Cousin Sue said…

    We're keeping Emmie-Rose and your family in our thoughts and prayers. May God grant you the strength to handle whatever comes your way.

    Cousin Sue (Kansas)

     
  • At 9/13/2006 07:35:00 PM, Anonymous Anonymous said…

    I wish I had some kind of pull to help you out, this is Bullsh*t that a renouned hospital would just sit back and watch a beautiful angel deteriorate. I will pray for strength for little Emmie Rose, and the power of a good fight for Stephanie and Chris to get through this. ((((HUGS))))

    Lesleigh

     
  • At 9/13/2006 07:41:00 PM, Blogger navgirl said…

    Can these people help?
    http://www.ohiolife.org/

     
  • At 9/13/2006 07:44:00 PM, Anonymous Becky said…

    A friend forward your story to a delphi forum to share and request prayers and good thoughts for your beautiful daughter Emmie-Rose. I pray that you are able to get a 2nd opinion. She is a fighter and is here for a reason.

     
  • At 9/13/2006 07:52:00 PM, Blogger navgirl said…

    I also posted your blog on a forum for prayers and one person suggested Miami Valley Hospital or Children's Hospital both in Dayton, OH and also contact St. Jude's Hospital and get their Ethics Committee involved.
    I hope these suggestions may help.

     
  • At 9/13/2006 07:54:00 PM, Anonymous Anonymous said…

    I posted on JL (lab forum) for Dawn about a Delaware Hospital. Here is their web site. http://www.nemours.org/internet?pid=3&cat=1

    Keeping you amd Emmie Rose in my prayers.

    Linda (friend of Dawn's from JL)

     
  • At 9/13/2006 08:12:00 PM, Anonymous Alexa P. Keaton said…

    Have you tried contacting St. Jude's? I'll bet their ethics committee wouldn't have a problem with your precious one.
    Also I believe you are referring to University of Michigan (U of M)since you mention Toledo. Have you tried Miami Valley Hospital of Dayton, OH or Children's Hospital also of Dayton? They are excellent facilities and less than two hours away. Worth a shot.

     
  • At 9/13/2006 08:49:00 PM, Anonymous Anonymous said…

    Catholic Media in Ann Arbor
    Al Kresta
    Kresta in the Afternoon

    Contact Information: alkresta@rc.net

    Call In to Show: Sienna Toll-free line 877-573-7825

    Email: alkresta@rc.net

    Website: http://www.avemariaradio.net

    Ask Al Kresta To Speak at Your Event: Nick Thomm nthomm@avemariaradio.net or 734-930-3164

     
  • At 9/13/2006 09:25:00 PM, Blogger Laura said…

    I was just given another suggestion for a hospital: St. Mary's Hospital in Grand Junction, CO.

     
  • At 9/13/2006 09:50:00 PM, Anonymous Anonymous said…

    Read this from U of M web site.

    Help with Difficult Decisions: Pediatric Ethics Committee FAQ

    Why is there a Pediatric Ethics Committee?
    The University of Michigan has a Pediatric Ethics Committee because the best medical care requires not only medical skill but good moral judgment. The Committee’s main purpose is to offer help and guidance on moral and ethical questions, such as:

    * Should treatment be started or stopped?
    * How much should a child be told about his or her disease?
    * Is the promise of treatment worth the suffering it may cause?
    * What is the best thing to do when we must face the end of life?

    How does the process work?
    The Committee discusses a case only when a health care provider, patient or family member asks it to do so. If a case raises ethical issues, the Committee will meet with the family and health care team treating the patient. At the meeting, the doctors, nurses and social workers will explain the medical facts. Members of the family will express their concerns about the care and treatment of their child. If there are disagreements, they will be freely and respectfully discussed.

    After a full discussion with the health care team and family, the Committee meets on its own to consider all the issues. It will then recommend the best course of action. A member of the Committee will talk with the family and treatment team about its recommendation. The Committee’s recommendation also will be written in the patient’s medical record.

    Do I have to take the PEC’s recommendation?
    No. The PEC’s recommendation is simply the group’s judgment about the best course of action for the patient. The family members and the health care team are responsible for the final decision.

    Betty & Russ

     
  • At 9/13/2006 10:16:00 PM, Anonymous Jennifer ( aka:none) said…

    I emailed all the people and places that were posted on this blog. Hopefully it will do some good.
    My prayers are with you and Emmie-Rose.

    Jennifer & Randy (one of your classmates at Comp. Training)

     
  • At 9/13/2006 10:20:00 PM, Anonymous Anonymous said…

    I am also the mother of a preemie, though we did not have the huge issues that you are having. My daughter was born and treated at Parkview Hospital in Fort Wayne. The NICU there is, as I am told, one of the best in the nation. I do know that when we were in fear that things would escalate we were told that she may need to be moved to Riley Childrens Hospital in Indianapolis. They were very highly recommended.
    I will keep you in my thoughts and prayers. Please keep positive thoughts, only God can decide when it is time for her to come home, not a doctor at a hospital.

     
  • At 9/13/2006 10:49:00 PM, Anonymous Anonymous said…

    Neonatal Care

    1. The Children's Hospital of Philadelphia. The hospital's Neonatal Intensive Care Unit (NICU) treats the sickest babies from around the country, annually receiving infants from 80 facilities in nine states. It also supports the hospital's Center for Fetal Diagnosis and Treatment, which helps pinpoint -- and sometimes correct -- problems while babies are still in the womb.

    http://www.chop.edu/consumer/index.jsp

    Betty & Russ

     
  • At 9/14/2006 01:57:00 AM, Blogger Dawn said…

    HA- You go girl- You got millions of people out there now pulling for ya. You will get out of there safely, don't you worry!!!

    I have to get back to bed, but tonight I'll start emailing these places too. No word from the news here yet.

     
  • At 9/14/2006 05:54:00 AM, Blogger Graciesmommy said…

    I was also going to suggest All Childrens Hospital. They saved my Gracie Mae after a stroke in utero and she is striving. There is a Dr. there named Dr. Casodante Amazing man!! He has a small satelite office in New Port Richey Florida. The phone number is 727-767-4149. There is also a Pediatric Neorosurgery specialist next door to them. There number is 727-767-4143. I will keep your family in my prayers.

     
  • At 9/14/2006 06:42:00 AM, Anonymous Jennifer said…

    I emailed March of Dimes Mich. Chapter. Will be looking and emailing more and will let you know if I here something.

    My love to your daughter, and my prayers

     
  • At 9/14/2006 07:55:00 AM, Blogger monica p. said…

    Emmie-Rose is beautiful!!! Thank you for the pictures.

    Please consider this: assign a totally committed family member-- maybe grandmother Pam-- to call these media people-- all of them at AveMariaRadio in Ann Arbor. Insist/pray/force the story on the air. Picket lines will form. Prayers by the trillions will be raised-- not like they already aren't!

    Jones-- General manager: 734 930 5201
    Al Kresta-- he does the daily 3 hour news radio show. he's very very good: 734 930 5201
    and Nick Thom is the news manager 734 930 3164

    all my children are now gathering for morning prayer-- we will PRAY!!!

     
  • At 9/14/2006 08:22:00 PM, Anonymous Anonymous said…

    praying for you wonderful people our hearts go out to you

     
  • At 9/14/2006 08:50:00 PM, Anonymous Anonymous said…

    Try Loyola University hospital in
    Maywood IL
    They saved my 1 lb 12 oz 24 weeker and they saved the two smallest babies in the world to survive.
    Dr Jon Mauraskas is the lead Dr.
    we call hime Dr Miracle. If he gives the same in agreement, I would believe him.
    God bless...

     
  • At 9/15/2006 09:24:00 AM, Anonymous Anonymous said…

    Have you contacted the National Right To Life? They are the same organization that tried to keep Terri Shaivo alive. If you can get them on your side, I'm sure they could provide publicity and lobbying assistance. God be with you and your precious girl.

     
  • At 9/15/2006 09:25:00 AM, Anonymous Anonymous said…

    Sorry.. forgot the link...
    http://www.nrlc.org/contact.html

     
  • At 9/16/2006 06:21:00 PM, Anonymous Anonymous said…

    As an a adult critical care nurse I am horrified at the lack of caring and dis-interest shown to you and your family. I have literally taken care of patients who have been proven brain dead by flow studies and we have kept them "alive" for extended periods of time through vent support, feedings, blood transfusions and meds; Yet your beautiful daughter who seems to have tons of fight in her is being tossed to the side by these characters who call themselves physicians. When they took the hypocratical oath they vowed to do no harm to their patients, yet the withholding of something as simple as food and blood products is against that oath. They should at least give her the chance to fight for herself by providing these simple things. If they want to argue and not provide advanced treatments and surgeries or restart her heart in the event of a crisis that is one thing, but the basic needs must be met. I can only imagine if one of those ethisist or physicians had their own daughter there it would be quite a different story. Hold on to your faith, fight for whats right, and threaten to sue the pants of these people. At the very least they will have to get their risk management people involved and it will buy you some time to make future arrangements for Emmie-Rose's care. God bless and my prayers are with you.

     
  • At 9/17/2006 07:09:00 AM, Anonymous Anonymous said…

    Dear Emmie Rose, keep up the fight girl! I pray to our lord to be with you and help you little angel. He will show the way. Keep the faith.

    Lots of love and prayers.

     
  • At 9/17/2006 08:37:00 PM, Anonymous Anonymous said…

    Try the Cleveland Clinic.

     
  • At 9/17/2006 09:21:00 PM, Anonymous Anonymous said…

    Wow...are they giving her IV fluids and not feeding her by gut? That is a whole different story. Also, the Cleveland Clinic doesn't take kids with bowel problems like your little girls....RBC is the place most kids go for that or MetroHealth. Is she stable enough to transfer? Most insurance will not cover a transfer unfortunatly, even Medicaid. Have you spoke to the other docs yourself? The hospital has to fax them parts of her chart with the xrays, etc as long as you say it is okay. Sometimes finding a doctor to take over is very difficult, as they don't like to go against each other. I wish you all the best of luck!

     
  • At 9/19/2006 09:31:00 AM, Blogger lojosa said…

    dont' quit you can never give up hope. cleveland clinic doctors DO work on patients in the metrohealth hospital 216 778 7800 ask for the comprehensive care dept. 216 778-5198. they are great people.
    our dd was a million to one shot in survival. with no good prospects according to dr. in nicu. now she is an adult living a normal life. doctors only base their opinion on previous case experiences.
    your daughter emmie rose is lucky to have such awesome parents working on her side.
    emilee rose is in our prayers.

     
  • At 9/19/2006 11:12:00 AM, Anonymous Anonymous said…

    My thoughts and prayers are with you and your family. Im sorry you feel this way about your health care providers. Im sure they did all that is possible for your baby. Your comment on the news however I didnt understand? The hospital trying to play god? If it wasnt for the NICU's these days 23 weekers wouldnt have a chance. But then playing god is OK?

     
  • At 9/19/2006 09:54:00 PM, Blogger Angie Tomah ,WI said…

    I am just a lurker and heard about your beautiful Emmie Rose. She is a miracle and to survive this long. That ethics community is sick and unhumane. This baby has made it this far. Who says she can't keep fighting. She has touched my heart. Just by reading about her story I can feel her zest for life and strength. I pray that a miracle happens in time. Not feed an infant and let her suffer. Well words can't express my anger. Please keep fighting, and Emmie Rose and family, I love you and will be praying for you. Love from Angie in WI

     

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