The Story of Emmie-Rose

This is the story of a little girl that came into this world way ahead of schedule. Now fighting day by day until she can be home with her family. This is Emmie's story. From 23 weeks old on...

Wednesday, September 13, 2006

Sep 14 - Media Help Please!

Since when is murdering a child legal in the state of Michigan?

When I stop and think, this is the most bizzar situation that anyone can be put in. I am having to spend hours each day to keep a baby that is fighting for her life alive.

Isn't that the hospitals job?

We need media exposure at this point!
Our legal team has contacted the hospital and its been cleared to talk with the media.

What is happening is that every hospital that we are contacting is being scared off because of the Pediatric Ethics Committee meeting finding:

ETHICS COMMITTEE RECOMMENDATION
Since physicians have determined that the patients condition is terminal and incurable, further medical interventions other than comfort measures are futile and transfer to another facility does not serve the best interest of this child. Furthermore, since continued medical interventions offer no reasonable medical benefit to the patient and such interventions serve only to postpone the moment of death, the treatment team is under no moral obligation to continue life-sustaining treatment. The parent's right to seek a second opinion has been met. Since it has been determined that no additional interventions can be offered to this child, there is no benefit in transferring her to another facility.


No it has not been met! We can't get an unbiased assessment of our child because of the committee meeting!

When she had her surgery on 9/3/06 the doctors said she would be with the lord in two days. We accepted that.

She is still here! She is still hanging on for her life.
I cannot accept the fact the hospital can not open their eyes and help a child that is still alive and fighting every day!

Media:

Please email us directly and we will let you know how to contact us

Chris Yannella
cyannella@comcast.net

29 Comments:

  • At 9/13/2006 10:15:00 PM, Anonymous Angie Allred said…

    I don't know anyone in the media or anyone in the medical field, but what I do know is how much you want to fight for your child. I have BTDT myself(I had 25+ week twins in 1998) and I HOPE and PRAY someone out there will hear of your story and help your little family!

    Angie

     
  • At 9/13/2006 10:32:00 PM, Blogger cyannella said…

    To everyone at COMPUTERTRAINING.COM thank you for all your support!

    All I wanted to do was update my MCSE certs and now look.

    Lets kick some bootie first and I will be back in class soon!

    Chris

     
  • At 9/13/2006 11:05:00 PM, Anonymous samnbensmama said…

    I will be praying for your family. Emmie-Rose is beautiful!!

     
  • At 9/14/2006 12:45:00 AM, Anonymous Cousin Kris in Florida said…

    Doing what I can to get the word out to as many media sources as I can. Love and prayers. We're fighting alongside ya Emmie...as long as you fight baby, we will too!

     
  • At 9/14/2006 01:10:00 AM, Blogger munkeesmama said…

    Still praying hard!!! Please keep contacting hospitals. If there's anything I can do to help contact hospitsl (I know it gets rough to keep a phone to your ear) please let me know. I know I'm a strange, but i've read your blog and lived the nicu nightmare. Contact me at elaina@stanfordfam.com

     
  • At 9/14/2006 02:13:00 AM, Blogger Dawn said…

    CHECK YOUR EMAIL!!!! I sent you something from someone that hopefully will be some major help at the hospital!! Go kick their bootie!! HA!!!!!

     
  • At 9/14/2006 02:57:00 AM, Anonymous Anonymous said…

    Have you tried John Schneider with the Lansing State Journal yet? He is acolumnist that fights for Michiganders' rights and such.

    here is his info

    Call John Schneider at 377-1175, send a fax to 377-1298 or e-mail jschneid@lsj.com

    http://www.lsj.com/apps/pbcs.dll/section?category=columnists09

     
  • At 9/14/2006 04:20:00 AM, Anonymous Anonymous said…

    I hope something really transpires from all your efforts. Your family is in my prayers and so is this precious baby of yours.

    good luck.

    B. L. H

     
  • At 9/14/2006 04:51:00 AM, Anonymous Dawn Aumiller said…

    I wish I could tell you something that would help. I have no connections...but I do know the March of Dimes is responsible for almost all of the prematurity research being done in the country. At the very least, your local chapter of The March of Dimes could help you get publicity for your baby girl. My son was born at 25 weeks last August, and though we didn't have all the difficulties you are having, I know how you feel. Get in touch with MOD in your area. You can find your chapter going to marchofdimes.org. I hope they can help you with something....I know they were there for us. My family and I wish you the best, and I hope you get through the rest of this as painlessly as possible

     
  • At 9/14/2006 05:07:00 AM, Blogger Andy said…

    Fwiw - This seems like a good time to contact:

    your senator

    the president of the united states - right up his alley, if you ask me!

    any and everyone that has any link or tie to children's rights/right to life. USE THEM! USE wheatever you need to if your gut tells you this little girl wants to live. Clearly the drs are not "first cause no harm" abled, so do what you need to do. Thank god for Blogs! All our prayers for sweet Emmie-Rose.

     
  • At 9/14/2006 05:15:00 AM, Anonymous Anita said…

    I am so sorry that this little girl is going through more then most people will have to endure in a whole long life time.

    My prayers are with her, and your family.

     
  • At 9/14/2006 05:19:00 AM, Anonymous Dawn Aumiller said…

    In my previous comment I said it was marchofdimes.org, it is actually Marchofdimes.com

    Sorry for the mistake.....

     
  • At 9/14/2006 05:24:00 AM, Anonymous shellie said…

    chris and steph-i spoke to the drs here at uh that i work for-they are ENT-but peds and they will be speaking to Rainbow-let you know if i hear anything-showed them the blog. might help change some things-worth a try.
    shellie/tony

     
  • At 9/14/2006 05:58:00 AM, Blogger heather said…

    I heard this story thru Candace, and want to let you know that I have sent your story to the Detroit AM radio station WJR, I also contacted national conservative talk radio hosts, Sean Hannity, Neil Boortz, and Laura Ingrham.. I pray that all of them pick up the story and baby Emmie gets the treatment she deserves!

     
  • At 9/14/2006 06:25:00 AM, Anonymous Anonymous said…

    Prayers to your family and that sweet baby girl. I hope you are able to get the help you need.

     
  • At 9/14/2006 07:01:00 AM, Anonymous Jennifer said…

    E-mailed March of DImes MI division will post if I hear something

     
  • At 9/14/2006 07:03:00 AM, Anonymous Anonymous said…

    Chris & Stephanie,

    I haven't kept up much but read everything after Chris' email came today. I am shocked and believe this story needs to be told.

    I have forwarded Chris' email and a plea to read and help to local radio personalities Brian (Bubba) Cowen and Katie McGillis of W4 Country asking them to get involved or forward the story to one of their newspaper/tv/radio friends who can and will. I hope that this will at least get someone involved.

    Our thoughts and prayers to all of you and Emmie-Rose.

    Shawn
    (online friend of Mom Stephanie)

     
  • At 9/14/2006 07:40:00 AM, Anonymous Anonymous said…

    I just wanted to say you and your family are in my thoughts and prayers! I can't imagine what you are going through, I had preemies also but only being 9wks and 4wks early, I cannot fathom having one born as early as yours!! Thoughts and prayers with you and your sweet baby girl!

    Michelle
    mommy to Breanna and Emilie

     
  • At 9/14/2006 07:59:00 AM, Anonymous Anonymous said…

    Praying hard for you and Emmie- Rose (I have an Emma Rose myself)
    Will spread the word on the Net and email my local papers.

    Have you tried faith based hospitals? Can she make a longer trip safely?
    Loma Linda in CA, Christus Santa Rosa in TX, St. Christophers in Philly?
    Even CHOP in Philly might be willing.

     
  • At 9/14/2006 08:07:00 AM, Blogger munkeesmama said…

    I emailed you...may have found someone who can help!

     
  • At 9/14/2006 08:11:00 AM, Blogger Miss T said…

    My prayers are with you and Emmie-Rose. I intend to forward your story to our local news...hopefully, your outreach will stir up some transfer prospects and possibly more. ((HUGS)) As a mother of 3, I can certainly understand your anger in this situation. GROW GIRL GROW!

     
  • At 9/14/2006 08:14:00 AM, Anonymous Karen said…

    I'm sorry to say that I have no advice for you. I wish I did! But I heard Emmie-Rose's story and I want you to know that she is in my prayers! She's a strong baby girl and deserves a chance for a wonderful life with her loving family!!

     
  • At 9/14/2006 08:22:00 AM, Anonymous Kimber said…

    http://www.jointcommission.org/

    Try this... take a look at the bottom of the page where it says log a complaint. Give them a call. It might help.

     
  • At 9/14/2006 08:33:00 AM, Anonymous Anonymous said…

    I am sooo heartbroken after reading Emmie-Rose's story...I simply can't believe that a hospital would starve a helpless infant! DISGUSTING! and I hope each and every staff memeber at U of M is ashamed of themselves!

    Please contact Cindy Fiore at the Hospital for Sick Children in Toronto, Canada. I have sent your blog address to her and asked for their help.

    Also they have a Herbie Fund that brings in patients from other countries and provides medical care at no cost to you.

    Her address is cindy.fiore@sickkids.ca

    Stay strong little Emmie-Rose! We are praying for you!

     
  • At 9/14/2006 02:02:00 PM, Anonymous Anonymous said…

    just wanted to let you know that i emailed a couple news stations out here in oregon. so hopefully they'll help somehow. God bless your lovely family!

     
  • At 9/14/2006 02:38:00 PM, Anonymous Anonymous said…

    I am sorry to hear such an precious angel is having a such a hard time just trying to live . I dont know how much good it will do but has any one tried Loma Linda Univerisity Medical Center in Loma Linda California? I had a little girl there once 17 years ago that was born 7 weeks premature and I am happy to say that come this June she will be graduating high school! So I know they work miracles cuz I had one they also have programs to help if you can not afford to pay ! Good luck to and Emmie-Rose our prayers are with all of you

     
  • At 9/14/2006 04:17:00 PM, Anonymous Christina said…

    I have no connections but has anyone called the ACLJ? They might take the case and get an injunction against the hospital for the moment. We will be praying for this tiny life and her whole family.

     
  • At 9/14/2006 05:27:00 PM, Anonymous Nicki said…

    I have no connections except on my website http://thebackyardbunch.spreebb.com but I want to let you know that I amprfaying for you and that baby girl. I had twins @26 weeks and though I did not have as much difficulties as you are facing i still feel your pain. Just give it to the Lord and HAVE FAITH! (((HUGS)))

     
  • At 9/15/2006 01:08:00 PM, Anonymous Anonymous said…

    I hope you don't mind but I sent the story to a children's hospital here in Indiana. It's St Vincent's Children's Hospital. Told them to take a look and see if there is ANYTHING they could do for her.

     

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