The Story of Emmie-Rose

This is the story of a little girl that came into this world way ahead of schedule. Now fighting day by day until she can be home with her family. This is Emmie's story. From 23 weeks old on...

Sunday, September 10, 2006

Sep 10 - Hello World! I'm still here!

Sunday afternoon... Stephanie and I have been up here for along time now.

The hospital called in the middle of the night to say her blood pressure and heart rate had slowed down. We jumped out of bed and ran up here.

Stephanie wanted to hold her when we got up here. Then all of us fell asleep in the room.
Emmie-Rose in mommys arms.

Her heart rate and blood pressure came up after she knew mommy had her in her arms.
The little stinker just wanted her mommy.

The lord is awesome! Funniest thing.... We were standing in line in waiting for our eggs to be cooked downstairs and was hearing a lady and her mother telling their story about her 5 year old son. He has had all kinds of issues with feeding and gut issues. Many of the things she was describing we are going thru now. All of us got our food and sat down together for what seemed forever talking about each others issues and milestones.
I think we made a new set of close friends.

After our chat we had a meeting with the doctor and demanded they start TPN and asked to talk with the surgen.

The fellow(pretend doctor) was on call and we explained that we would like to have the dead tissue removed from her because we were never given that option to begin with.
We are waiting to see if this is going to happen or not. We have the one transfer option still on the table. I'm going to try and call around tomorrow to find some others as backups.

We are not out of the woods, her skin is somewhat pale today, she is probably due for blood which she has not had in a week.

We are so humbled by all the prayers and support.
I know the prayers are working!!!!

Will keep you updated as soon as we can.

Love Chris and Stephanie.

8 Comments:

  • At 9/10/2006 12:41:00 PM, Anonymous Anonymous said…

    I cannot believe this!!! I am hanging on to this blog (I must check 20 times a day to see the news)!!! Praise the Lord...your little angel sure is fighting!!1 It seems that the doctors should recognise this and keep helping her with her fight. God bless all of you.

     
  • At 9/10/2006 01:09:00 PM, Anonymous Anonymous said…

    Chris and Stephanie,
    I also check in several times a day to check on your little trooper. My contined prayers are with you. God Bless all of You.
    Mara Lopez

     
  • At 9/10/2006 01:39:00 PM, Anonymous Cousin Cathy said…

    Chris & Steph:
    Just found out about baby Emmie-Rose..all my thoughts and prayers are with you. Miracles do happen, so don't lose faith. She seems to be quite a little fighter.
    Cousin Cathy (Cleveland)

     
  • At 9/10/2006 02:14:00 PM, Blogger Dawn said…

    Love you guys! So glad I got to come up and see her and the family and help out a little. I wish I could have stayed longer. I left you a little something by the phone. Its not much but I hope it helps a little. Prayers continue!!!

     
  • At 9/11/2006 05:31:00 AM, Anonymous Anonymous said…

    Chris and Steph:
    Rob and I pray everyday for baby Emmie-Rose to come home. Let us know if you need anything.
    God bless all of you!
    Rob and Tammy

     
  • At 9/11/2006 11:02:00 AM, Anonymous Anonymous said…

    WE ARE SO THANKFUL AND GRATEFUL FOR ALL THE PRAYERS, MESSAGES, AND GOOD THOUGHTS FOR EMMIE-ROSE!!!! AL& I (SEPHANIE'S PARENTS) ARE SO VERY GRATEFUL FOR ALL EVERYONE HAS DONE. iT HAS BEEN A REAL ROLLER COASTER OF A RIDE WITH THE OTHER 3 CHILDREN AND TRYING TO LIVE A NEAR NORMAL LIFE FOR EVERYONE. THE LORD HAS BEEN SO GOOD AND WE ARE GIVING ALL THE PRAISE AND GLORY TO GOD FOR EMMIE-ROSE AND THE HER LIFE!!!SHE HAS BEEN SUCH A TESTIMONY OF GOD"S LOVE AND FAITHFULNESS!!!PLEASE CONTINUE TO PRAY FOR ALL OF US DURING THIS TIME!! THANKS AGAINE AND GOD BLESS ALL OF YOU!!!

    PAM ^ AL (NANNA & PAPPA)

     
  • At 9/14/2006 07:13:00 AM, Anonymous Anonymous said…

    Chris and Stephanie,

    Words cannot express my feelings as I read your blog. Our prayers are with you. We wish only the best.

    Please do not disrepect the medical professionals who have extrememly worked hard to keep Emmie-Rose alive. Residents and Fellows are not pretend doctors. Residents are doctors who have not specialized. In most cases after intern year they are fully licensed doctors. Fellows have been licensed doctors for several years, have fully completed their medical training, and often are board certified. They are undergoing additional training to be an expert in a sub-specialty.

     
  • At 9/25/2006 07:36:00 AM, Anonymous Anonymous said…

    I just cannot hold myself not to write some words for your blogspot. I hope God will give you the strength for Emmie-Rose. She is such a wonderful little baby. Wow, she is a trooper. It must have been very draining for you as parent had to go through ups and downs at the hospital. May God bless you and the family.
    Only one thing that I want to tell you that a fellow is a real doctor, not a pretend doctor, they are named fellow just because they are in another training for sub specialty, a resident is a graduated Medical Doctor who undergo training in Specialty, then they will be a fellow, a Specialist Medical Doctor, again, not a pretend doctor, who undergo the Sub-Specialty Training. So whoever you kept calling a pretend doctor is actually a Real Pediatric doctor who is in training for NICU specialist.

     

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