The Story of Emmie-Rose

This is the story of a little girl that came into this world way ahead of schedule. Now fighting day by day until she can be home with her family. This is Emmie's story. From 23 weeks old on...

Sunday, September 10, 2006

Sep 10 - Evening On the Phones

Talked with the surgeons again tonight and they also have said tonight that they can no longer offer us any help. We are more than welcome to a second opinion.

Since the "No-Ethics" meeting on Friday the entire hospital has completely washed their hands of this baby. Kris, you are totally correct… I believe now that the hospital and insurance are thinking this is a waste of time now. She should have died days ago what is she still doing here.

We ran home and got on the phone tonight.

I only have three potential hospitals lined up for transfer.

Being the weekend I mostly talked with Fellows and not the Attendings.
I need to plead my case with the doctors, see if they can offer her a treatment plan, then work on getting her transferred.

I'll be up in the morning taking my oldest to school then coming home to get back on the telephones.

As soon as we know more I will be sure to update everyone.


Chris

posted by cyannella @ 11:01 PM  

16 Comments:

  • At 9/11/2006 02:19:00 AM, Anonymous Anonymous said…

    Chris & Steph,

    just let me know if you need me to pick up Z from school or anything. I'm open all week & can help her with her homework & stuff. I have my cell on me- it's no problem at all-

     

  • At 9/11/2006 05:15:00 AM, Anonymous Anonymous said…

    Your family has an extra prayer during your hard times. God Bless and give baby Emmie a kiss for us :)

     

  • At 9/11/2006 10:36:00 AM, Anonymous Anonymous said…

    Surgery is necessary if medical management fails or the bowel is perforated (torn). After opening the abdomen, the surgeon may find a swollen, purple bowel with areas of necrosed (dead) bowel. The usual areas involved are the terminal ileum, cecum and right colon but the whole bowel may be involved. The goal is to remove only that bowel that is fully necrosed (dead) and to leave any marginal areas in the hope that they will survive. This may require an ostomy and/or another operation within 24-48 hours to evaluate any surviving bowel. The nutritional outcome is roughly based on the remaining intestinal length and the medical and surgical team will discuss this with you.

     

  • At 9/11/2006 03:15:00 PM, Blogger Dawn said…

    This comment has been removed by a blog administrator.

     

  • At 9/11/2006 04:48:00 PM, Anonymous Anonymous said…

    Please know your family is in my thoughts and prayers. I check your blog several times a day for updates.

    Please never give up.

     

  • At 9/11/2006 06:18:00 PM, Anonymous Anonymous said…

    Chris and Steph, I just do not understand what the hospital is doing. She is such a little trooper, how can they write her off? My continued prayers for Emmie-Rose and you.
    Blessings and Prayers,
    Mara Lopez

     

  • At 9/11/2006 07:13:00 PM, Anonymous Anonymous said…

    Chris & Stephanie --

    My thoughts and prayers are with all of you. It's in God's hands. Stay strong.

    -Cousin Sue (Kansas)

     

  • At 9/11/2006 07:21:00 PM, Anonymous Anonymous said…

    Chris --

    Al can give you some Northwest frequent flyer miles if you need them. They have a hub right in Detroit.

    Cousin Sue
    Work - 913-577-0930
    Cell - 913-660-6697
    suec@united-rotary.com

     

  • At 9/11/2006 07:28:00 PM, Anonymous Anonymous said…

    I AM SO SORRY THAT I CAN'T BE WITH YOU, BUT PLEASE KNOW THAT YOU ARE ALL IN MY HEART AND MY THOUGHTS.
    ALL THE LOVE IN THIS WORLD TO ALL OF YOU!
    HUGS AND KISSES ,
    TONYA AND GIRLS

     

  • At 9/11/2006 07:50:00 PM, Anonymous Anonymous said…

    I just wanted to let you know that little Emmie is in my thoughts and prayers each day. I've followed her blog since one of your family members (Dawn) told me about it.

    She is a strong little girl and I believe that she will pull through. I know you won't but don't give up on that sweet girl.

     

  • At 9/11/2006 11:44:00 PM, Blogger EksFaktr said…

    This comment has been removed by a blog administrator.

     

  • At 9/11/2006 11:45:00 PM, Anonymous Anonymous said…

    sue that hospital. how can they do that to a baby that obviously is meant to live. and that wants to live! you all are in my prayers. as soon as you get that precious girl to another hospital (and i hope it's soon), sue the pants off this one!

     

  • At 9/12/2006 12:31:00 AM, Anonymous Anonymous said…

    "Where there is life, there is hope".

    Naho!

     

  • At 9/12/2006 06:21:00 AM, Anonymous Anonymous said…

    Remember that family and friends take their cues from you. If you hide your feelings of distress, they may assume you are doing just fine, until you let them know differently.

     

  • At 9/12/2006 06:33:00 AM, Anonymous Anonymous said…

    http://www.marchofdimes.com/prematurity/nicu/index.asp

     

  • At 9/12/2006 07:06:00 AM, Blogger cyannella said…

    >Remember that family and friends
    >take their cues from you. If you
    >hide your feelings of distress,
    >they may assume you are doing
    >just fine, until you let them
    >know differently.

    Everything is out in the open!
    After last fridays meeting I though I was going to have a heart attack after what the hospital told us. My chest hurt for several days after the news.

     

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