The Story of Emmie-Rose

This is the story of a little girl that came into this world way ahead of schedule. Now fighting day by day until she can be home with her family. This is Emmie's story. From 23 weeks old on...

Tuesday, September 19, 2006

Sep 18 - For all our web readers.

Emmie-Rose says Thanks for the video capture card gramps!

WXYZ Channel 7 News video from 9/18/06




68 Comments:

  • At 9/19/2006 12:59:00 AM, Anonymous Anonymous said…

    I would have loved to see this clip, but it says it is no longer available. Or is my computer not working right?
    Your family is in our prayers.....

     
  • At 9/19/2006 01:10:00 AM, Blogger munkeesmama said…

    The video says it is no longer available :( Continued prayers!

     
  • At 9/19/2006 02:54:00 AM, Blogger Dawn said…

    Nope I can't see it either :-(

    Gramps try again!! :-)

     
  • At 9/19/2006 03:43:00 AM, Anonymous Anonymous said…

    http://www.detnow.com/wxyz/home/0,2132,WXYZ_15920,00.html

    Go to this link they still have part of it playing

     
  • At 9/19/2006 04:21:00 AM, Anonymous Anonymous said…

    I was able to view the video and am praying that your baby gets what she needs and that this video will help that happen

     
  • At 9/19/2006 04:23:00 AM, Anonymous Anonymous said…

    i watched the video and it is heart wrenching to think what the parenrts are going through

     
  • At 9/19/2006 04:34:00 AM, Anonymous Anonymous said…

    Excellent job Steph & Chris! We know each step you take is a difficult one but remember with God all things are possible!
    All our Love...
    C,A,J,A

     
  • At 9/19/2006 05:03:00 AM, Anonymous Heather said…

    Good for you Stephanie and Chris. Thanks for putting the video clip up to see.

    I pray it brings some positive response for Emmie.

    God Bless

     
  • At 9/19/2006 05:09:00 AM, Anonymous Anonymous said…

    Let's get it national everyone....email all the news you can!!!!

     
  • At 9/19/2006 05:51:00 AM, Anonymous Anonymous said…

    You Grow Girl!!!!!!!

     
  • At 9/19/2006 06:01:00 AM, Blogger C.C. said…

    You handled yourself beautifully. I'm praying for your family and telling people about your site. This is so horrifying to watch unfold. May God have mercy on those hospital administrators. (They'll need it.)

     
  • At 9/19/2006 06:14:00 AM, Blogger munkeesmama said…

    Wow!!! Awesome, I hope someone can come out of the woodwork and offer some hope or treatment.

     
  • At 9/19/2006 06:43:00 AM, Blogger cyannella said…

    It should be working now.
    Youtube had server maint. last night that delayed it posting on their site.

     
  • At 9/19/2006 07:24:00 AM, Anonymous Aaron and Leah said…

    Steph and Chris,
    You are handeling this with such Grace. We are all holding you in our hearts and prayers. God is ABLE! He knows the plan for her precious little life. What a blessing she has been to this cold world already. We love you and are begging the Lord for his Grace on Emmie. She is so beautfiul.
    Love you all,
    Aaron and Leah Alden and Gracie

     
  • At 9/19/2006 07:26:00 AM, Anonymous Leah said…

    I agree with the previous post - lets all continue to email / call /visit the channels all around us until it makes it to National News. She cannot speak for herself 'yet' and we all have been given the gift of our voice. Let's use it!
    Leah

     
  • At 9/19/2006 07:27:00 AM, Blogger Dan Moore (Kansas City) said…

    Guys, we are praying for you all. Your notes on the site reflect a peace that passes all understanding. When our baby girl was fighting cancer, a dear lady at our church reminded us that "Jesus loves that little baby so much more than you ever could." That was a truth that we had always been taught in our homes and growing up at FaithWay, but it became a comfort that we clung to during the dark and difficult nights whent the unknown loomed heavy over our hearts. Remember that God has shown us the path of life...whether that life for Emmie is here or "over there" please know that we are praying. God's hand is on that little girl...and she is loved!!

     
  • At 9/19/2006 07:27:00 AM, Blogger Dan Moore (Kansas City) said…

    This comment has been removed by a blog administrator.

     
  • At 9/19/2006 07:50:00 AM, Anonymous Tawni said…

    I was able to see the video. I only recently heard about your story, but as the parent of a former 31 weeker, I understand your fight. I am in disbelief about all of this. You have a beautiful baby girl who obviously wants to live!! I am so sorry that you have had to go through all of this to get what every person deserves. I will continue to pray for Emmie-Rose and your family as well as for a positive outcome to this fight, and soon!!!

     
  • At 9/19/2006 08:01:00 AM, Anonymous Anonymous said…

    I am so sick to my stomach as I watched this news clip. WHY would these people not give this little girl a chance. You say that they are baffled as to why she is still here...maybe there is a reason for that and they won't even try to understand why. This is just awful. I am praying for you and and that little girl. You show them that she is meant to live.

     
  • At 9/19/2006 08:05:00 AM, Anonymous Anonymous said…

    I saw it. It bought tears to my eyes! I hope you get some kind of response. HUGS to you and your family and Emiie Rose, keep fighting baby girl!

    Angie

     
  • At 9/19/2006 08:08:00 AM, Blogger The Lloyd's said…

    I am so glad that you are making this so public. I have passed your story on to several people I know and you have lots of people praying for you.

    Jenny

     
  • At 9/19/2006 08:14:00 AM, Anonymous Anonymous said…

    I have been following Emmie Rose's story and praying for your family. God's will is a powerful thing!! She is such a fighter! I agree, the Lord's hand is definitely upon her.

     
  • At 9/19/2006 08:31:00 AM, Anonymous the murphy's in CT said…

    I am so glad that you were able to get this out to the media finally. EVERYONE needs to know how the hospital is treating emmie-rose. Hopefully there is a medical team out there will step up and do what is right for her!!!!
    Good Luck mom and Dad!!! YOu are awesome!!!

     
  • At 9/19/2006 08:35:00 AM, Blogger Laura said…

    Thank you so much for sharing your story with us! Emmie-Rose's story is touching so many; I pray this publicity makes the difference and your sweet little girl gets the chance she deserves. You continue to be in my prayers.

    www.caringbridge.org/visit/asherandjacob

     
  • At 9/19/2006 08:51:00 AM, Anonymous Anonymous said…

    I am surprised the U's legal team is letting their staff post up here.

    Just digging their hole deeper.

     
  • At 9/19/2006 09:29:00 AM, Blogger Amity said…

    This is so heartwrenching. How awful to deny such a precious child a fighting chance. You are in my prayers.

     
  • At 9/19/2006 09:43:00 AM, Anonymous Anonymous said…

    My thoughts and prayers are with Emmie-Rose and your family.

    I am extremely happy you were able to get good media coverage and hope this causes the hospital to reconsider their actions.

    GO EMMIE-ROSE!!!

     
  • At 9/19/2006 09:46:00 AM, Anonymous Anonymous said…

    I dont know your family, but i do hope that your daughter gets the care that she needs soon. She is a fighter. Good Luck to you and your whole family.

     
  • At 9/19/2006 10:20:00 AM, Anonymous Anonymous said…

    I am the mom of a 28 weeker born at 1 lb 8 oz. Though he didn't experience NEC, I can't imagine having the right to make the decision to continue to try to fight for his life or not taken out of my hands. I really do not believe my son's NICU would have done this. Your family is in my prayers as this preemie experience is a draining one at the best of times.

    My son is now a happy, healthy 1 year old who is over 21 pounds. These kids are amazing fighters.

    Good luck.

     
  • At 9/19/2006 10:33:00 AM, Anonymous Kelly said…

    My heart is so saddened as I read the blog. What a special little miracle you have. How truly sad that UofM doesn't see her the same. My oldest was born in UofM 8 years ago. I have another birth that could take place there near January and I am seriously reconsidering that option. Please know that our prayers are with you and your family. We are praying that God will change the hearts of the doctors and that at least ONE will step forward as an advocate for Emmie-Rose. It only takes ONE!!! Praying that tomorrow at court you are blessed by a truly Godly judge who sees that this is about a life and rule in favor of sweet Emmie. Her eyes are so vibrant in the pictures and she's working so hard against the negativity. Looking forward to hearing amazing news after court tomorrow!!

    KellyM.
    Belleville

     
  • At 9/19/2006 10:39:00 AM, Anonymous Anonymous said…

    My husband and I are praying for you and your precious Emmie Rose. This sweet girl was put her for a reason and it is not ours decide when or if she leaves this world until our Father calls her home. I pray that she lives a long and full life and defies the odds and continues to "BAFFLE" everyone. For God's thoughts are not our thoughts. Praying~~~

     
  • At 9/19/2006 11:06:00 AM, Anonymous Emy said…

    All my love and blessings to your family!!!!!!!!!!!!!

     
  • At 9/19/2006 11:17:00 AM, Anonymous Anonymous said…

    Im sorry all this is happening to you and your family. However one comment in the video the nurses and docs think they can play god? because of the wonderfull NICU's in the world they are able to give 23 weekers a chance...Im assuming It was ok for them to "play god" at the begging right?

     
  • At 9/19/2006 11:22:00 AM, Anonymous Anonymous said…

    I am praying for you. That should be YOUR choice to make not the hospitals. Can you get your precious angel moved to a different facility?

     
  • At 9/19/2006 11:24:00 AM, Anonymous Anonymous said…

    WooHoo way to go guys! The clip was awesome. I hope it gets Emmie what she needs. Good luck and God Bless!!!

     
  • At 9/19/2006 11:27:00 AM, Anonymous Regina said…

    I can't believe the hospital staff is being so cruel.I'll be praying for you beautiful little girl. That hospital staff should be ashamed of themselves!!

     
  • At 9/19/2006 11:40:00 AM, Blogger Sandi said…

    I have emailed your story to our news stations in Cleveland, Ohio.
    Hopefully the more coverage the quicker the hospital will stand up and take notice!!

    Praying for your beautiful Emmie Rose.

     
  • At 9/19/2006 11:51:00 AM, Anonymous Kristin Krumwiede said…

    I pray for your family daily, but also for the doc/staff of the hospital that Emmie Rose is in... those poor souls just do not realize that God is speaking to them through Emmie Rose and them being "doctors" just aren't listening to God wishes.

    Fight Emmie Rose, we all know you can. May God grant your "team" the strength to fight for you!!!
    God bless
    Kristin Krumwiede

     
  • At 9/19/2006 11:53:00 AM, Anonymous Anonymous said…

    I am so sorry you and your family have to go through. It saddens me to know that a hospital, a place employed by those meant to save lives, is treating this chile, a LIFE, this way. They should be ashamed of themselves. As for Emmie Rose, she is a fighter & GOD is definitely watching over her. I will be praying for you and your family. GOD BLESS!!!

     
  • At 9/19/2006 12:20:00 PM, Anonymous Anonymous said…

    Emmie Rose and your family will be in our prayers. Keeping fighting for life!!!!

     
  • At 9/19/2006 12:26:00 PM, Blogger Beckie's Life's Lessons said…

    Glad to see the news clip and pray hospital will give her nurtrition again.

     
  • At 9/19/2006 12:43:00 PM, Anonymous shannon said…

    I just wanted to say that i live in florida in the tampa bay area and i have e-mailed this story to their news casts. I am hoping this will help get your little girl's story out there. I believe in miracles and am still praying for her. I have a 3 1/2 month old and can't imagine what it feels like. God Bless your family.

     
  • At 9/19/2006 01:37:00 PM, Anonymous Jennie C. said…

    I've read this whole blog today, from the very beginning until today. My heart breaks for you and Emmie Rose. May God keep you all in His protective, loving care. I sure do hope she makes it!

     
  • At 9/19/2006 01:42:00 PM, Blogger stacie said…

    I seen the clip. I pray it makes them open up there eye's. God bless you and you're family and my hopes and prayers will be with you and Emmie Rose. There are miracles so please don't give up hope! She has lasted so much longer then she was supposed to there is a reason and we might not know right now but you will. God has a plan for her.. He is shinning his light on her.

     
  • At 9/19/2006 01:50:00 PM, Anonymous Anonymous said…

    I have left a messege in hospital's e-mail Add. I hope others will do the same.
    God Bless you all, and I am praying for you and with you through your fight for your baby girl's life!
    Keep up the good work in being her voice, and know that you are doing everything that you can possibly do...thats reaching out and touching the lives of millions of caring people who are willing to stand by your side and fight with you!

     
  • At 9/19/2006 02:25:00 PM, Anonymous The Other Stephanie said…

    Yannellas- in case you check this before your voicemail. The Governor's office called & i have a direct # for you to call back on. They would like to speak to you guys to see if you want them to open an investigation. I have called back & left a message with your contact information. Hopefully you will be hearing from them soon.

     
  • At 9/19/2006 02:33:00 PM, Anonymous Anonymous said…

    To the dear parents of Emmie Rose,
    Just to let you know that the U caused the death of my great-neice. They were taken to court and the truth came out. My family is praying for all you. I truly believe in my heart that God creates miracles everyday and I believe she is the miracle and the Uof M is trying to cover up the truth as to their wrong doing. I am a good friend of Amie's and she keeps me updated. I have put her in the Hands of Our Lord. Come on Emmie show the word your miracle. You are so beautiful and I am so behind your parents. You have so many praying for you. Emmie I am so behind your parents and they are doing the RIGHT THING!!! There is no excuse that her food was stopped. I pray the Uof M is seen for what they really are. Go Chris and Stephanie go for it!! Show the world the truth and save other children.
    May God Be With All Of You'
    Sherry Parks

     
  • At 9/19/2006 03:01:00 PM, Blogger A View From the Sidewalks said…

    This is nausiating. I thought this futility stuff was just a problem for us Texans.

    I'm so sorry for the evil that this hospital is inflicting on your little baby and you both. I'm praying, praying, praying for your little girl.

    Have you got a right to life group to provide you with a strong legal representation?

    Much Love. Many Prayers.

     
  • At 9/19/2006 03:33:00 PM, Anonymous Karen said…

    I watched the video clip this morning and am hoping enough people will contact the hospital and they will resume feeding this precious baby girl.

    Your family is in my prayers.

    ~Karen

     
  • At 9/19/2006 04:28:00 PM, Anonymous Anonymous said…

    Our prayers are with you and emma rose.. I am grandma to a micro-preemie..l lb 8 oz.. now three.. many times the docs were baffled, but they kept up with the meds, and we kept up with the prayers..He is now 3.. Prayers are pouring out for your baby girl all over the land.. You grow girl..

     
  • At 9/19/2006 04:29:00 PM, Anonymous Anonymous said…

    The Michigan Right To Life People--
    Michigan Contact: Cal Zastrow (989)859-4482
    Washtenaw Co Contact: Bob VanBemmelen 734-434-5984

     
  • At 9/19/2006 05:06:00 PM, Anonymous Susan Farley in Ypsilanti, MI said…

    Today I e-mailed Fox 2 News and WDIV Channel 4 News in Detroit, as well as Inside Edition, CNN Headline News, and MSNBC about Emmie-Rose's situation. I hope that one or all of them will take little Emmie's situation to heart and air her story, like Channel 7 News in Detroit did.

    God bless you, Emmie!

     
  • At 9/19/2006 05:33:00 PM, Anonymous Anonymous said…

    [ "Anonymous said...
    I am surprised the U's legal team is letting their staff post up here.
    Just digging their hole deeper.
    9/19/2006 08:51:21 AM " ]

    Where on Earth do you see any posts here from the U of M staff? Am I missing something?

     
  • At 9/19/2006 05:35:00 PM, Anonymous Emmie's 2nd Cousin Kris in Florida said…

    Sharron,

    Thank you so much for notifying the news organizations here in the Tampa Bay area. I've been wanting to notify BayNews9, but the published e-mail addresses for them are not working for me for some reason.

     
  • At 9/19/2006 05:45:00 PM, Blogger alicek131 said…

    UM hospital is cleary trying to cover up something they did wrong by not helping your beautiful baby girl. I hope you win in court tomorrow. I hope your lawyer raises some of these concerns in court.

    This is do outrageous and certainly NOT ethical. UM needs to step up and do what they can to help your little girl grow stronger and help her to get transferred to a hospital that cares...like Toledo Children's Hospital or DeVos Children's Hopital in Grand Rapids.

    You are all in my prayers...every day.

     
  • At 9/19/2006 06:15:00 PM, Blogger Khyricat said…

    Chris and Stephanie, and all of your extended family..

    as you know you and Emmie Rose are in our thoughts and prayers.. I know I have brought her up in Shul in the Misheberach (healing prayer) list more then once since this ordeal started, and I realy hope that by the end of this high holiday season there will be a much better outlook on this.. but meanwhile her name is still on the prayer lists and know that you are all in our hearts as we hope to see something good come from this.. I am hoping that tomorrow leaves us with a positive result and I'll have to go make those next size up hospital gowns for her... I am planning on making them anyway, but didn't get them sewn tonight and am too tired to sew a straight seam at the moment... Hopefully I'll have them to the other Stephanie to bring you over the weekend and she has grown enough to need them if not already- SOON!

    Amie from work

     
  • At 9/19/2006 06:57:00 PM, Anonymous Anonymous said…

    Stephanie and Chris,
    I pray for Emmie-Rose every day. She is so strong and beautiful. You are wonderful people your children are so lucky to have you. God put Emmie-Rose in your hands because he knew you would fight for her. Bless you

     
  • At 9/19/2006 06:58:00 PM, Anonymous Anonymous said…

    I have been following this story for about a week now, and it breaks my heart that those doctors (if you can even call them that) are still refusing this obviously strong angel the right to EAT. My prayers are will all of you! I emailed as many newscasts as I could find, and I hope others are doing the same. There is an urgency here to get something done! I pray that you win tomorrow guys!! Keep fighting Emmie-Rose!!! God bless you--

     
  • At 9/19/2006 07:14:00 PM, Anonymous Anonymous said…

    First let me say my heart goes out to you. I am the mother of a 1lb 9oz baby girl and I am in such shock and can not believe what I have read and heard about. I am not sure what the extent of the intestinal issue is but I know they saved my child with bowel issues as well (not NEC but that can be taken care of as well). The amazing Doctors and Nurses at St. Peters Hospital in Albany NY have the most compassion and caring I have ever seen. If you wouldd like more information please please email me at tamara_martell@hotmail.com. I am sickened and my heart goes out to you and your tiny bundle. Tami

     
  • At 9/19/2006 07:30:00 PM, Anonymous Anonymous said…

    Amen! That's all I can say. I hope that this turns things around, and that little girl gets what she needs to get bigger and stronger! I'm still with you all out here in Oregon. You're in my prayers everyday!
    -Maijken
    PS - GROW, EMMIE, GROW!!!!

     
  • At 9/19/2006 07:31:00 PM, Anonymous Nancy Cortese said…

    I was just able to see it and to email it to a friend. Not sure what the problem is for those who can't see it.

    Chris and Stephanie, a friend of mine is going to have a Mass said for Emmie-Rose. She said that if family members could attend the Mass they would receive more graces from it. Please let me know if you can attend sometime soon? My email is nlc4jafra@yahoo.com.

    God bless all of you and especially Emmie-Rose!

     
  • At 9/19/2006 08:03:00 PM, Anonymous Anonymous said…

    I have emailed your story to the news channels here in GA. I hope they can get your story out. My thoughts and prayers are with you and Emmie-Rose.

     
  • At 9/19/2006 08:23:00 PM, Anonymous Anonymous said…

    This is what I read today...
    and it may give some insight... as well as some warning to the rest of us

    "If you can, stay out of the hospital during the summer -- especially July. That's the month when medical students become interns, interns become residents, and residents become fellows and full-fledged doctors. In other words, a good portion of the staff at any given teaching hospital are new on the job.

    Summer hospital horror stories aren't just medical lore: The adjusted mortality rate rises 4% in July and August for the average major teaching hospital, according to the National Bureau of Economic Research. That means eight to 14 more deaths occur at major teaching hospitals than would normally without the turnover"

     
  • At 9/19/2006 08:28:00 PM, Anonymous Anonymous said…

    Sweet girl Emmie-Rose
    The absolute most positive thoughts are with you and your family right now.
    Stay strong, hang tough little one.
    Help is on the way...................

     
  • At 9/19/2006 08:30:00 PM, Anonymous Melanie (friend of Dawn's) said…

    I was able to watch the video at 11:24pm on Tuesday!

    I am praying that you get the response you need from the court on Wednesday!

     
  • At 9/19/2006 09:29:00 PM, Anonymous Anonymous said…

    Both are girls were born at 30 weeks gestation. Emilie was born with a brain bleed and is now strait brilliant! Get ahold of Childrens Hospital of central California (California USA) Madera. I bet they would help you!!! They saved our girls lives. PS.. i fired her first doc because he said she would not walk or talk *wink*

    Pamela
    559 584 1679

     
  • At 9/19/2006 09:49:00 PM, Blogger Jasmine LeAnne said…

    Hi!

    I read your blog and I saw the story clip. There is an awesome hospital in Minneapolis, MN that deals with cases just like Emmie's. My son was there last christmas. It's the Children's Hospitals and Clinics in Minneapolis. You should try to see if they can get her there. the site is www.childrenshc.org.

    You are in my prayers and I know my little angel is watching over her.

    Jasmine and Angel Spencer

     
  • At 9/19/2006 10:05:00 PM, Blogger Jasmine LeAnne said…

    Chris and Stephanie,

    I passed along your story to the Social Worker that I had at the Minneapolis Children's Hospital that my son was at. I will check with you tomorrow to see what the court says.

    Thinking of you always,
    Jasmine

     

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