August 21st 37 Days Old!!!
HI Everyone!! Life is SUPER BUSY around here these days as You might imagine!! We are trying to spend as much time as We can with Z, M and B as well as be at the Hospital too.
Z starts school in a few weeks so that will give her "something" to do as well as help keep her in good spirits!! She really wants her "Baby Sis" to come home.
M is doing pretty well. Trying to Potty train a little. Keep fingers crossed that We can get her to pick it up pretty quickly here.
B has been going potty on the Toilet for awhile now, just not completely trained yet.
All are growing up, getting into everything and trying to make Mommy lose her hair but otherwise, All is Well!! :)
Baby Emmie-Rose is doing EXCELLENT!!! WOO HOO!!!! We are so excited and Very Proud of Her. She is so Beautiful!! We have figured out (I think) why her BP has been falling low. When She gets a Blood Transfusion, Her BP stays regular but when She doesnt have one for awhile, it stays low. So if We keep her on a regular schedule of transfusions, then it seems like She should be Good to Go!! We shall see!! She is feeding continuously, I am ECSTATIC!!! She is up to 1.5 cc's an hour through her feeding tube. Her other vitals are staying regular. She will be done with Her antibiotics tomorrow morning, for her Ecoli infection (14 days) though Her blood results kept coming back negative after the first find.
Our next goals as She is VERY Stable right now, is to continue to increase her feeding amounts til She is on a normal amount, continue weaning her from the Breathing Machine, and "fatten" her up so She can have the Shunt placement to be able to bring her home. She has to be 4.4 pounds to get the Shunt put in to her brain.
Thanks to Everyone who has been praying for Emmie-Rose. Please continue to pray for Our "Baby Sis" that She will grow grow grow and wean from the Machine so that We can finally bring her home. We still have a long road to go but the Day will be here soon and We cant wait!!
YOU GROW GIRL!!!
Keep on Praying!
Love,
Stephanie
Z starts school in a few weeks so that will give her "something" to do as well as help keep her in good spirits!! She really wants her "Baby Sis" to come home.
M is doing pretty well. Trying to Potty train a little. Keep fingers crossed that We can get her to pick it up pretty quickly here.
B has been going potty on the Toilet for awhile now, just not completely trained yet.
All are growing up, getting into everything and trying to make Mommy lose her hair but otherwise, All is Well!! :)
Baby Emmie-Rose is doing EXCELLENT!!! WOO HOO!!!! We are so excited and Very Proud of Her. She is so Beautiful!! We have figured out (I think) why her BP has been falling low. When She gets a Blood Transfusion, Her BP stays regular but when She doesnt have one for awhile, it stays low. So if We keep her on a regular schedule of transfusions, then it seems like She should be Good to Go!! We shall see!! She is feeding continuously, I am ECSTATIC!!! She is up to 1.5 cc's an hour through her feeding tube. Her other vitals are staying regular. She will be done with Her antibiotics tomorrow morning, for her Ecoli infection (14 days) though Her blood results kept coming back negative after the first find.
Our next goals as She is VERY Stable right now, is to continue to increase her feeding amounts til She is on a normal amount, continue weaning her from the Breathing Machine, and "fatten" her up so She can have the Shunt placement to be able to bring her home. She has to be 4.4 pounds to get the Shunt put in to her brain.
Thanks to Everyone who has been praying for Emmie-Rose. Please continue to pray for Our "Baby Sis" that She will grow grow grow and wean from the Machine so that We can finally bring her home. We still have a long road to go but the Day will be here soon and We cant wait!!
YOU GROW GIRL!!!
Keep on Praying!
Love,
Stephanie
posted by Stephanie @ 2:42 PM
1 Comments:
At 8/22/2006 09:54:00 AM,
Anonymous said…
Thanks for the update; am so glad to hear Emmie is doing well. We are definitely keeping all of you in our prayers. Love Aunt Lois and cousin Sally Jo
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